Better moments today in general so that's a plus.. though I still feel bad, my legs are still full of fluid and the left side of my face is swollen and my vision keeps dropping out, coughing still and O2 still bouncing around everywhere but I've had a lot of better moments today than the last 2 days. I still have my Quicken Will Maker software open and filling it in along with durable power of attorney – because despite all i've been through, nothing scared me so much as this. Ava has a fever again this afternoon though 🙁
I don't know what is up with this household, but her and I seem to go down together, but she's just cranky, no other symptoms.
I have refused to fall asleep for like days now out of fear i'd stop breathing that's how bad it got. The picture of Ava and I, I posted on Instagram it was at 2:54a.m. Neither of us could sleep and Jason refused to go to sleep worried something would happen to me. I'm hiding the left side of my face becuse it's swollen and a rash goes from my eye to my chin.
This morning I laughed when I asked Julie Falk to video call me, and I was like, you know I look like death lol. So if you can zoom in, i'm actually smiling for the first time, which hurt my broken facial skin. 🙂 Julie was cropped out because she'd be pissed if I posted her morning look 🙂 But I just look horrible, I still do, but that cheered me up a ton, especially chatting with Joey! My oxygen levels actually stayed at 100% while I was talking to her, which is what gave Jason Mellen the idea to find his old c-pap machine. That definitely helped, but I had to remove it because it smelled like someone c-pooped in the c-pap mask and Ava said the same thing 🙂 lol.
Another pic I snapped with Ava where I'm not hiding. Whenever I get any virus a rash breaks out and this one opened up near my mouth when I tried to eat and it goes all the way up to my eye. In general the left of my face is bad off and filled with fluid and my right ankle has 6 cankles and is painful.
Now whenever I'm in the hospital fighting a virus, usually multiple ulcers will appear within hours where my gum line meets the cheek. Very typical when I get very ill. Ava just told me she has one and required a huge amount of orajel… i have to watch her like crazy now. Her O2 was 95% earlier so now I'm going into mamma bear mode again and forgetting about me. That plus a fever knowing my own history worries me.
Originally posted on Facebook on April 28, 2020.
