Yes, can you believe it?  I broke my wrist.  I just want to scream so loud “WHAT THE HELL!!!!!”  Give me a break didn’t mean literally give me a break!!  So the picture above is about 2 days later, and I haven’t got a permanent cast yet.  The hospital gave me a temporary one, but I replaced it with a solid wrist brace, which outdoes their stupid sling any day.  I am taking a breather at the moment though, something I won’t enjoy this week when I get the flashiest cast I can on my arm to represent the coolness, the brightness of the person I once was before all this stuff started piling on at an unimaginable rate.

So I’m a handful of treatments into the new infusions, no difference yet but that’s expected.  My last iron level was 6, yes, just 6.  So that was last Monday. I frankly asked the hematologist what happens when it hits 1 or none, and she said that the lowest they’ve seen is 1 and that person was bad off.  They expect someone with my values to be really bad off.  Unfortunately, it seems only a hematologist knows this.  Normal doctors don’t see this kind of stuff every day so they have no idea the problems this can cause.  It really is life changing when it gets so bad.  I’m just praying at this point it works, something must.  I’m so weak, so tired, I’m ready to be done.

I saw the rheumatologist people this week before I broke my wrist.  They were suspicious of a rheumatic problem. I was given a blood pressure med to help with the loss of circulation. I had to get xrays to figure out everything else.  Well, then I broken my wrist, and they showed me the x-ray and the report. The report clearly says “periarticular osteoporosis is seen”.  The doctor pointed out normal arthritis as well, but this caught their attention because it’s the first visible sign of rheumatoid arthritis, and there was no denying it was there along with my shattered wrist.  Ok, so things are slowly starting to make sense and once I can get all these specialists coordinated with each other all I can see is light at the end of the tunnel.

I broke my wrist in the stupidest way that shouldn’t have caused a break.  Just like last year’s broken tailbone, just stupid stupid things.  I was chasing Ava up the stairs and my pant leg caught the baby gate and I flew forward and hit my hand on the steps.  A normal person would be sore, not broken and shattered.  Oh well, I pray for an end soon.

Ava is doing remarkable, you would have never thought what happened a couple weeks ago happened.  Just some weird freak thing out of nowhere.  She is perfect now, thank god. 

Andrew brightened my day yesterday though by making me laugh.  Randomly out of nowhere he walks into the living room and says, “Can you write me a note to my teacher that says I’m adopted?”  I was like WTH where did that come from. As soon as I busted out laughing he ran off to his bedroom!  Of course he wasn’t serious, and I made sure to show him all of the photos of him in the hospital with me, and showing him the photos of him in the incubator with tubes next to his current stuffed animals!  I asked him if he thought he was born by a leopard family and given to us to raise and he just laughed and ran off.  It’s these silly random moments I wouldn’t give up for nothing.